Wednesday, December 18, 2013

Wednesday Update on RF

Not much has changed for RF. He is still on oxygen, but his respiratory therapist did say that his lungs were beginning to sound a bit better, not much, but some. The pediatrician from our group agreed that he is showing small improvements - increase in appetite and more interactive - indicating that he is starting to feel a bit better. He can only go about 2 hours awake before he has to lay down and rest/nap. The simplest things tire him out easily. And while we know that we cannot rush the healing process, we are ready to be at home. Our pediatrician told us that he has to be able to go day and night without oxygen before we can be released and that that process can take longer in some children - 8-10 days. We are praying that we will not have to spend Christmas in the hospital. Our room is looking more and more home-like with RF's toys scattered about and our blankets and pillows (hospital blankets and pillows are a joke...) laying around. But the walls are definitely closing in on us. We asked if we could take RF in a wheelchair on a 'ride' or outside into one of the garden areas, but he is basically quarantined because of the RSV. So, we are trying to make the best of the situation. We know we have to keep RF in good spirits so that he can focus on resting and getting better. 

Thanks for checking in on us. We will update tomorrow with any changes. 

Resting as much as possible...

Play-time with daddy...

RF loves balloons, so I ventured down to the gift shop yesterday while he was napping. He gave us a few smiles while he batted at it for a while once he woke up. 


RF also loves flags. The kid can spot them from a ways away. I had Papa Tad send me a few of his photos that had flags in them. As soon as I pulled them up on the iPad, RF's face lit up. We're trying to do everything we can to ease him through this.